Not sure if it was the 75mcgm of Fentanyl, the top up of fluids or ??, but we (both) had 6 + 2hrs sleep and less pain getting out of bed! We added the new anti-nausea pills along with the extra Oxy before we leave, we followed the recliner-plan and even though the treatment was 1hr+ late and 1hr+ for the doctor-review there is NO 🤮!!
We were pretty excited about the less-pain part of the day and softly wondered if the radiotherapy was working ... until the review doctor said “no” it’s usually 1-2 weeks before you see any results! Bummer - we didn’t ask and nobody told us before this! Anyway tonight we are back to the usual pain level and with two more treatments to go still wondering what lies ahead!
Did I mention how impressed we are with pretty much everything and everybody we’ve encountered since we started this journey!! Apart from the one admin/receptionist who is too busy to look up and serve ... well anybody ... and one slightly grumpy night nurse (Jospeh came to understand why he was grumpy - buzzers go off all night because patients, alone in their dark (private) room are scared), everybody has been very nice. A bit nervous about how young some staff are, but we’ve learnt we have to stay alert no matter how old or young or experienced or inexperienced. We’ve lightened up a bit from our solemn not-so-jolly start and make sure we show our gratitude to all.
So - we aren’t sure what we have done to the nurses on the admin desk at radiotherapy! Is it Joseph’s 🤮 across from their desk? Is it because he requests a recliner (so he doesn’t 🤮 in the waiting room)? Is it because he insists on getting up/down at his own pace? (So he doesn’t 🤮). Is it because he returns to the recliner after treatments (until he feels he can leave without 🤮) -well we already know this annoys them given their “I thought you had left” yell across the room! It’s the two loud-blonde Australian ones - not the efficient one with the accent - if it wasn’t for her we’d still be sitting there!
So it will be interesting for the last two treatments, because for sure he’s heading to the recliner!
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| And we found the perfect bottle-holder for the walker ... Our friends Mary & Scott’s company makes these for bikes But hey!! They work here as well. |
Glad to hear that you had a better day. You know, what you said a couple weeks ago about not being in the mood for smiling and happy people in the hospital at first really resonated with me. I generally try to be quite positive at work but what you said made me realize that sometimes we also need to just reflect what the patients are giving out. Maybe some people aren't ready to deal with smiles yet. Maybe next visit. Thanks for giving your perspective. <3
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