The BEST night in a very long time so it seems the patch is working! Hooray!!
Extra pills still needed through the day/night and any activity requires strategic planning and math calculations to avoid pain and agony. Many interesting discussions” between Fentanyl-induced patient and no-math ”nurse” jill!!
We hear that the US has agreed with radiotherapy and that it won’t interfere with the trial and they want it to start asap. (The resident relaying this message also tells joseph that if HE was taking as much Fentanyl as joseph is, it would render him unconscious!!)
Angus the Radiology Oncologist (RADONC) arrives to explain; radiotherapy will not heal the fracture but attacks the lesion/mass causing the break and reduce the pain, treatment will be either one large dose or five (daily) smaller ones, and a “sunburn” at the site seems to be the worst side effect (or that’s what we hear!) Of all the options it seems this is our best choice to keep us on the trial.
More waiting ... trial treatment at clinic on Friday we HOPE ... radiotherapy session(s) at RAH Monday we HOPE!
So hospital for a few more days - regardless we can’t/won’t go home until we have a “hospital bed”! Joseph simply can’t get out of bed without it. Turns out Simone’s Aunt Jen (her mother’s sister) has a “spare” hospital bed at her house!
The craziness that has my sister (Jen) with a “spare” recliner chair and walker (and a million other things we’ll need) and Jane’s sister (Jen) with a hospital bed!
For all the bad luck, we are the luckiest people in the world
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| The sheepskin makes the already comfortable bed even more so! |
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