Crazy day ...
We are to be discharged today! We had no idea!
... But of course - with the patch, Joseph’s pain is mostly under control and the radiotherapy can be given as an outpatient - so there is no need for us to be here.
The good news is, we have our trial treatment on Friday. Angas the RADONC tells us that next week he will have an exploratory scan and then the radiation itself (hopefully) by the end of that week (Feb 21).
So it’s Fentanyl baby for a few weeks ... at least.
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| A life saver for joseph - a life taker for some. |
But we can’t/won’t go until we have the hospital bed - it’s the only way Joseph can get out of bed - painkillers or no painkillers. We think we can squeeze Jen/Jane’s bed into our elevator but it needs to be delivered - it’s just too heavy!! ... The Occupational Therapist has found a hospital bed that can be delivered today so we don’t have much choice - we’ll rent that bed for a couple of weeks and work on getting the other bed.
I have a minor melt-down thinking about where to put the bed - where to put the things that are where the bed will go ... and when to do all of that ... and then it turns out the bed can’t be delivered today!! Hallelujah!! The bed lady apologises - I tell her it’s a gift from heaven!
So tonight Joseph is happy ... happy he’ll have yet another needle stuck in his veins for the trial drugs and happy to get his first tattoo - a tattoo to mark the spot that will hopefully take away the back pain. You could say he’s delirious!
So after all these years, Joseph is getting a biker tattoo? Is that what you said? What is he planning ... something goth.. or OMG.. probably a rare bird.... Actually I do know what you are talking about.. I have another friend that had radiation and they gave her a tattoo.. but it was a very tiny spot.. kinda dull.. have Joseph hold out for something more creative... lots of love to you both... JKM and DGH.
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