A weekend of mostly sleeping, drugs, tiny eating and lovely visits.
Critical timing of pills meant a good night sleep for both and so a reasonable day spent in the chair. Fish and chips (& prawns) with Jen & Michael and C&P and kiddies and Joseph sat in his chair and ate 6 prawns and some ice cream. Not a bad Saturday.
Not such good pill timing the next night and not a great Sunday. Kiddies both visited while I was out so he made an extra effort to sit in the chair. In bed by 4.00 p.m. and pretty miserable through the night.
At the 5.30a.m pill taking we decided the 4 hourly Oxy schedule the RAH pharmacist stipulated, as opposed to the “as needed” schedule while in hospital, wasn’t working so he would just take them when he felt he needed (mostly 45 mins before any activity). No doubt it will be too many once we tally them up and so probably a bigger dose of Fentany will be neededl! On 62.5 now - how high can you go???!!
Regardless nothing stops the pain of getting out of bed/chair or bending. So we topped up for the trip to the clinic today (Monday) for fluid infusion and he just makes it to the chair without 🤮 (I hate typing the word). Two hours for the ½ litre is a tad luxurious (too fast hurts his kidneys) but with another OxyCodone and the fluids seeping into his body and I finally find the right spot for the pillow and Venus aligns with Mars and he declares it the best session ever! ... and he looks like a different person!
More good bits happened through out the day; the Palliative Care Team called - not as morbid as it sounds - help with all kinds of things, pain included and after two phone calls (me to them) we have an appointment with Radiotherapy for the initial scan and tattoo on Thursday!! Yippee!! Hopefully they tell us the daily treatments start Monday (too hopeful) or at least one day next week? We have such high hopes for this treatment.
I took my Mother to a funeral on Sunday (cousin of mine) and while I loved seeing my other cousins and have a timeout from home,it may explain why I ended up rather down on Sunday night and didn’t write a posting .
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