April 15

After some restless, sad days since “the car ride” we had to call on the nurse, who in consultation with the “on-call” doctor put him back onto the pump with us topping him up with “extras” (breakthrough pain meds) as needed.  It was patches of sleep and some not and still being restless and sad - so yesterday (14th) the nurse and I had a video call with PC doctor and coordinator, and that, along with the records of “extras” we kept, was enough for them to make significant changes to the meds; increased background dosage as well as to the “extras”.

So we topped him up and he fell into a much more relaxed sleep. 

His back/bottom have been so sore lately, so within hours of asking, Andrew from Domicile (rental equip) delivered a “cloud” mattress!  (Turns out Andrew had delivered to this apartment four years earlier!) ... With help from Mischa the (now) two nurses, without taking him out of bed, installed and inflated and had him floating on little pockets or air that, with the help of a pump, inflate and deflate as needed!! In addition to everything else Palliative Care have provided us (and honestly where would we be without them) I have the services of night-nurses!. So tonight came Jin at 10 and I disappeared to the end room to sleep perhaps ...

Now while he floats on his little clouds, we sit and wait and watch. Mischa read Bill Bryson’s I Love a Sunburnt Country to him that is guaranteed to bring a smile no matter if your eyes are open or shut... and all of us (M&S, C&P & me) are feeling relief (and a million other things) that he seems finally to be resting peacefully and we are here together as tight as tight can be.