Well what a difference a day (or two) - and a virus makes...
Monday (16th) Angus from RADONC tells us March 30th is the earliest he can pencil us in for our 5 (obviously out-patient) radiotherapy treatments!!! Since we had been waiting since March 10th, and that it takes 7-10 days to feel any effects, we were pretty disappointed with this news. So, in our nicest, slightly-pleading voice, we asked Angus, that given we were already here, in hospital on the 6th floor, and could be at radiotherapy on the 2nd floor in a heart beat, maybe they could just slot us in whenever they could? We weren’t going anywhere, we didn’t have anything else to do!
So Angus went away and after waiting two days and hearing nothing we decided to not push anymore. We know it’s crazy out there (and creeping into the hospital) - so we made our decision and I wrote my (previous) post. Minutes?Seconds?An hour? ... well not long after at 10.30 p.m. during meds, the nurse mentioned that we have a 7.00 a.m. radiotherapy appointment in the morning. Goodness me!!
Plans for home changed; we stay in, do a short day-visit home Thursday, then go home after the 3rd treatment and return Mon & Tues as an outpatient (total of 5 treatments) ... OK - we can do that!!
The good thing about a 7.00 a.m. radiotherapy appointment is that it really frees up your day! We had a good day with Tom helping and Julie arriving ... and then it was Thursday (19th) - the day we planned a trial run home
JJ the Palliative Care doctor arrived with a story - it wasn’t his story and he didn’t think it was a great story but here it is: this hospital was becoming the centre for Coronovirus treatment and they “suggested” instead of going home and coming back that we just go home ...now ...instead of Friday! Gulp! Gulp!! Joseph was keen ... me not so much.
I packed, the physio came in, the OT came in, a nurse came in, the cleaner came in, the coffee lady came in ... and then the pharmacist came in. It took her a long time to go over the list of meds and thank goodness Tom was there - of course the meds wouldn’t be ready I had to come back after 5), but off we went with some free syringes, a roll of toilet paper and lots of unopened chocolate milk labelled with Joseph’s name and a double-sided page of pill names, descriptions, quantities and I was responsible.
We made it home - no 🤮 and back into his lovely (hospital) bed and kiddies come to visit and once I wrestle the Liquid Panadol from the pharmacist (she’s trying to sell me cheaper - I want what he’s used to) and I race back to RAH and pickup the bag full of drugs and have a(nother) slight meltdown when I-can’t find my parking ticket, but the (lovely) little man at the gate lets me through and finally we settle down for the night with me dispensing.
... and here we are ... we made it through the the night and are off for radiotherapy.
Right now we feel good - we are supported by so many wonderful people.
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