Monday 20 January 2020

Just as the doctor mentioned - not until the drug is flowing through his veins ...

We started this Monday at 10.30 a.m. and after the vitals and bloods and waiting 1.5hrs for the final blood results found out his albumen reading was 30 and if it had been 29 he would have been disqualified from the trial!!! 

Finally at 1.30 p.m. the drugs start to flow and we can “relax”!!  




A long day - fluids, drugs, wait, bloods, drugs, wait, bloods and then leave for home at 5.00 ... but we are OK with all of that.  It’s taken seven (!!) weeks to get to this point ... nine more weeks of waiting (3 lots of treatments) then more scans to assess.  Meantime, and this is our hope; minimal side affects, the trial drugs start working and there is some improvement in how joseph feels.

ONE has become our favourite number ...

Bravo to joseph for forcing himself to eat when he really didn’t feel like it ... and it’s not as though there was my delicious cooking there to entice him!!   I’m thinking that tiny little “oneth” of albumen, the tiny little bit that made it for us, might be from the bowl of my home-made carrot soup?? Of course - it could be that I used Super *Sally’s Stock in it OR maybe it was the excessive amount of butter that makes it so yummy? ... it could have been that he ate some red-cabbage coleslaw Sat. night - the first bit of veg in it’s raw form he’s had for a few weeks ... it could have been the croissants/cheese/ham/jam we had for breakfast Sat a.m. - just the four of us.  

Well it could have been any of those but I think it was mostly all of those positive vibes, prayers and love you all sent our way - and we thank you so much for all of them.

*Super Sally is the wife of the man Joseph does his Mallee-Fowl monitoring with.  Her name is actually just Sally but she’s one of those people who can do anything (I have a few of those in my life!) and loves to cook - hence the stock

2 comments:

  1. This is just the best news. Congratulations to both of you! Now let the work begin! Thinking of you with love.

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  2. This will be a journey of oneths. Celebrate each one and on to the next. Lots of love and hugs to you both.

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