Wednesday 15 January 2020


I guess your kind words and love sent from near and far are working ...

We have just been notified that our appointments have been bought forwarded and the treatment is now starting Monday 20th.  We have an appointment time and even an appointment card but I’ll feel better (not sure about joseph) when he is finally sitting in the chair with the contraption in his arm and the serum (or whatever it’s called) set to go.

All being well - it will be treatment on day 1, day 3 and day 5.  Some of that will be fluid replacement but that cycle should repeat every 3 weeks until week 9 when he will have a follow-up CT scan ... and I guess a reassessment.  We also know the treatment won’t be fun but right now it’s what we need.

Joseph is being a trooper and enjoying having me wait on him ... and for a change I’m not complaining (too much) about it! Mostly I make him smoothies!!    Sister Jen offered up a spare recliner (who has a spare recliner sitting around?!) and Jospeh accepted it gratefully and it has become his new home!  With an IKEA table on wheels (urgh! so many screws!!) that wheels nicely over the top of the chair it’s a pretty good setup.  

The table was chosen so he could sit and do jigsaw puzzles but right now he’s in a bit too much pain so Cassia stepped in and finished off the 3D puzzle and it’s amazing!


So more vials of blood (how much does one person have to give) and yet another CT scan (easy to type and say but each time it’s an intravenous injection of dye that’s not a lot of fun). Tomorrow will be #3 since Dec 3rd.

Thank goodness it’s tennis season here down under ... it acts as a nice background to fall asleep to, and even watch!  Thank goodness also for Netflix, Stan and YouTube and as always thanks to Steve Jobs for our iPhones that can double as remotes for our AppleTV because we lost our little tiny silver one (somebody must have received for Christmas!!?? - pretty sure it fell while I was wrapping gifts!). Otherwise Netflix et al, and the entertainment that attempts to take your mind of of life would be out of touch!

I’m off now to buy a sheepskin for the recliner - all that sitting (I know he needs to get up and walk but ...) needs a bit of padding for his poor bottom.  To think we shipped a container filled with 1,000 sheepskins to Ottawa in February 1983.  We had them on beds, on floors, in cars; we gave them as gifts - we sold some (one even to Margaret Trudeau!) and then we sold the last lot to IKEA (thank you Ulf) but now almost 37 years to the day, we need to go and buy one!!



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