Thursday, 16 January 2020

More tests and nearly there ...

We are well into the appointments and days away from the start of the treatment and it can’t start soon enough! Joseph’s right kidney, isn’t working (hasn’t been for a while) and is causing him grief so he’s upped the OxyContin and counting the hours until Monday.

Today was two scans that required die to be injected -  one of them was a scan of the blood!? (with radio-active dye) - but it seems that the jumping on and off the high tables caused more grief than the needles!!   Yesterday was more blood and another ECG (not sure what they think has changed since their last one a week ago?!) but we won’t complain because Renee tell us we are definitely IN!!  We ask about the results of the biopsy - isn’t there a requirement for the appearance of the protein?

Well not according to Renee - she tell us that it doesn’t matter what the biopsy shows in the US that was just so they know how it all looks - a baseline reading of sorts. Huh?   We explain to her that wasn’t what we were told by Carol (who was filling in for Mel who has since been replaced by Renee and we never did meet).  Carol, who clipped, clopped around in heels (urgh!) told us “oh no you are not necessarily IN - it will all depend on the results of the biopsy test by head office, as to whether you are approved”! Dear me!!  We explain to Renee the agony that the waiting and wondering has caused us and I’m still not sure she understood.  

So far joseph is the only person in adelaide on this trial.  It has a crazy set of requirements - on one hand they need somebody in fairly good health (heart, blood pressure etc.) and on the other hand somebody quite sick with cancer ... that has spread.  So “lucky” is Jospeh to tick off all of those boxes and hence our eagerness to get started.  Joseph says he can’t believe how much he is looking forward to something so horrible.

Pablo did a great job of explaining how the immunotherapy will work and I really did understand what he was saying ... but of course I can’t remember.  BUT - I’ll get him to explain it again and include it in here because apart from how much faith we are investing in it - it is also quite fascinating.


So just one more weekend ... 

Wednesday, 15 January 2020


I guess your kind words and love sent from near and far are working ...

We have just been notified that our appointments have been bought forwarded and the treatment is now starting Monday 20th.  We have an appointment time and even an appointment card but I’ll feel better (not sure about joseph) when he is finally sitting in the chair with the contraption in his arm and the serum (or whatever it’s called) set to go.

All being well - it will be treatment on day 1, day 3 and day 5.  Some of that will be fluid replacement but that cycle should repeat every 3 weeks until week 9 when he will have a follow-up CT scan ... and I guess a reassessment.  We also know the treatment won’t be fun but right now it’s what we need.

Joseph is being a trooper and enjoying having me wait on him ... and for a change I’m not complaining (too much) about it! Mostly I make him smoothies!!    Sister Jen offered up a spare recliner (who has a spare recliner sitting around?!) and Jospeh accepted it gratefully and it has become his new home!  With an IKEA table on wheels (urgh! so many screws!!) that wheels nicely over the top of the chair it’s a pretty good setup.  

The table was chosen so he could sit and do jigsaw puzzles but right now he’s in a bit too much pain so Cassia stepped in and finished off the 3D puzzle and it’s amazing!


So more vials of blood (how much does one person have to give) and yet another CT scan (easy to type and say but each time it’s an intravenous injection of dye that’s not a lot of fun). Tomorrow will be #3 since Dec 3rd.

Thank goodness it’s tennis season here down under ... it acts as a nice background to fall asleep to, and even watch!  Thank goodness also for Netflix, Stan and YouTube and as always thanks to Steve Jobs for our iPhones that can double as remotes for our AppleTV because we lost our little tiny silver one (somebody must have received for Christmas!!?? - pretty sure it fell while I was wrapping gifts!). Otherwise Netflix et al, and the entertainment that attempts to take your mind of of life would be out of touch!

I’m off now to buy a sheepskin for the recliner - all that sitting (I know he needs to get up and walk but ...) needs a bit of padding for his poor bottom.  To think we shipped a container filled with 1,000 sheepskins to Ottawa in February 1983.  We had them on beds, on floors, in cars; we gave them as gifts - we sold some (one even to Margaret Trudeau!) and then we sold the last lot to IKEA (thank you Ulf) but now almost 37 years to the day, we need to go and buy one!!



Monday, 13 January 2020

Updates on Joseph

Dec 5th  - Joseph was diagnosed with Stage 4 Cancer (in the tubes that lead from the kidney to the bladder).  It’s a not-so-common cancer, but it has spread a bit to his liver, lungs, ribs and lymph nodes.  He has had pain in his groin since returning from Canada in August and figured it was his hernia, but the pain has gathered momentum the past month so off to the doctor.  He looks back now and wonders if the on/off pain the past two years was the start of it and not the hernia?    Dec 17th we met with the Oncologist who said Jospeh would need a biopsy before he could tell us very much. He worked hard to get an appointment for the biopsy on Friday (dec 20th) instead of having to wait over the holidays and into Jan 2nd.  Dec 20th he had a biopsy that will help the Oncologist determine the best type of chemo/treatment.  We go back to him on Dec 31 and hopefully then we can get some idea of what 2020 will hold. 

Jan 6th.
After four agonising weeks of waiting, appointments, checking up, Christmas, waiting, checking up, biopsy, appointments, New Years and more waiting ( while managing his pain with OxyContin + Tylenol and sleeping a lot and feeling the cancer working its way along), joseph was finally due to start Chemotherapy today (Monday jan 6th) at the Royal Adelaide Hospital.

In the background the oncologist was working to see if Joseph would qualify for an Immunotherapy trial. (Neither treatment particularly enjoyable but results from the trial seemed promising and that is where he really wanted to be.)
We are a public patient at the RAH as opposed to those who pay premiums and attend private hospitals/clinics and choose their doctor (oncologist) etc. Ours works at both RAH and his private clinic - and it’s the clinic who are running the trial.

So minutes before they were to start chemo we heard he was IN and we raced across town to the clinic - signed the papers to hand over life as we knew it and then found out - we weren’t exactly in!  That biopsy from weeks ago needed to be sent to the company running the trial for analysis (they are looking for DP-1) and those results will determine if he is really IN.  Well that takes 7-10 days!!  So ... more waiting.  I offered to drive to hospital, pickup the biopsy and fly with it to Singapore on the 3.00 pm. Flight.  They thought i was joking ... but i wasn’t.  Urgh the waiting.

Anyway this afternoon the oncologist called joseph to ask if he was OK with the extra waiting time. Joseph told him yes, and asked his opinion and the doctor seemed to think it was indeed worth waiting. So that’s where we sit (literally) right now.  What to do to fill in this new “gap”?  They are gaps - those waiting periods  - gaps because life sort of comes to a stop until it starts again.  Indeed, it becomes a mind game.  ... and out come the jigsaw puzzles.

Jan. 13
Well we’ve been waiting - moderately patiently to hear news ... we did hear that the biopsy had left for the USA (not Singapore) on Tuesday (jan 7) and were hoping to hear later in the week to setup appointments ready for when approval came through.  

That didn’t happen - so today (Mon 13) joseph called to be told appointments were for Friday (17th) ... and then a call back to say treatment would start ... the FOLLOWING  friday January 24th!!!  Finding this very difficult to digest and joseph mustered his strongest voice to express his dismay at the extra week being added on.  

 We agreed to wait 7-10 days (for treatment to start we naively thought).  Obviously that was 7-10 WORKING days - but cancer doesn’t distinguish between work days and weekends.  Thursday 16th will be SIX weeks since the initial diagnosis - that’s a long time when nothing is happening except the cancer continuing on it’s merry way!   Well that’s not entirely true - the 3D puzzle of St. Peter’s Basillica is coming along nicely.



Monday, 3 July 2017

More to the saga ...


Before I write about my adventures in the northern hemisphere -  there is an extra titbit to add to the saga of moving/selling the house on the dock.

You should know it's mostly me venting so be warned ...

I received an email from Peter Simon (the buyer of mum's house) - henceforth referred to as "creep face" -  just as I was leaving for my trip.  The dishwasher wasn't draining properly he said - he obviously remembered a comment I made when selling him the house (I felt it never drained as well as it should).  I whipped off an email explaining that I couldn't help and suggested he refer to the manual, and/or Google  and off I went.

In Barcelona, in my flying fog, I read another email from creep-face  … dishwasher now not working at all - he priced a replacement ($2k) and figured it would be appropriate for me to contributed $1k!!  Woah - off went another email to him, to tell him how gob-smacked I was by his audacity, and to tell him that NO, I would not give him one thousand dollars.

In Elche a few days later, with less fog, I read the END of that email where he (creep face) tells me he has gone ahead and TAKEN the one thousand dollars from the amount he owes me!!!  (He (creep-face) owed us $3,800 for the new air-conditioner). I was very, very upset … and helpless.

I fired off another email demanding he reimburse me. I figured he didn't get that email so I fired off another and then everyday for the rest of the trip I sent it again and again and I've never heard anything from him.


Six weeks later I'm home, two months after the move and I don't have my one thousand dollars … and I guess I never will.  

BUT, Virginia there must be a Santa Claus, because two weeks ago somebody plastered graffiti all over the side of that house on the dock.!! 

I hope it cost him (at least) one thousand dollars to fix it.


Wednesday, 26 April 2017

the saga that is how we are here...

I moved into our new home on Friday and it's Sunday and here I sit with no TV (it won't turn on) and no internet (they come tomorrow) so what else to do but write about the saga that has me here …

Mum fell in November - tripped on a median strip and broke her knee and elbow.  The elbow required surgery and pins - bummer.  She was a bit of a mess for a few days with a very heavy cast on her elbow and unable to get around without a lot of effort.   As is the lot with my family, she had somebody with her almost every waking minute so after a week it was off to respite care and  I'm sure the medical staff were happy to see us go!!   We were happy as well - until we arrived at the most miserable place on earth!!  St. Margaret's!!  

.. ok - I'm sure there are a few other places worse than this - and I know we should be grateful that we even get medical care - and we are - but dear me! This old (key word) old, convalescent home has been up and down, given things and had them taken away and is now the holding ground for CAP Patients (Care Awaiting Placement) … and hidden in that name is the clue that it is full of mostly old people, mostly with dementia, mostly with an injury (permanent or not) and without exception all needing help/care for everything they do.  Oh dear - it needs to be modernized, it needs brightening up (I tied up the curtains to let in more light) … it needs some TLC - but I figure the staff are reticent to complain lest they decide it's too much bother and delete it forever.  

Still … as with everything that has happened since that day in November … there was a silver lining … and we took advantage of mum's situation to have her assessed for care: respite in a nursing home, permanent placement in a nursing home or qualify for TCP - and she passed all of them with flying colours!  (She was on so much OxyContin it rendered her incoherent most of the time.) So  we took Door #3 - TCP (Transitional Care Package)  - AT HOME!!  That was clever - she would come home so I could look after her (yikes!) but I would have all kinds of help (physio, bathing, O.T. etc.).  We just needed to have the house assessed …

So I cleaned up; cleared away, cleared out (paths to/from bathroom etc) and mum came home (first time in four weeks) to show the therapist/person/whatever she was (well she was about 18 that's what she was) how well she (mum) could cope.  Mum did well; "we'll put a little ramp here", we'll but a rail here", we'll put a whatever there" said the seemingly-18 year old … and then she said "Beryl, show me what is in this room"!!  … and poor mum opened the door to the dark garage, didn't see the step and because she was wearing that (stupid) brace, her knee didn't bend and down she went onto the concrete floor (luckily covered in carpet)… and because she was wearing a (very) heavy cast on her arm, it jammed her into her shoulder and … it broke!!!    "Well I'll just call St Margaret's I think they have a mobile Xray machine!!"  … "oh there's no answer" said miss therapist.  So I told the seemingly 18-year old that there was no answer because it was lunch time and every available person was delivering meals to the poor wretched souls and I was pretty sure there was absolutely no hint of an X-ray machine there - mobile or stationary!  (I knew there wasn't a footstool for mum's broken knee, I knew there wasn't a million other things and I was pretty sure I didn't run into an X-ray machine either.)   I suggested she call an ambulance!  … and there we sat for nearly an hour  - mind you, the operation to get her into the ambulance was pretty impressive, with a blow-up piece inserted under her bottom that forced her into a sitting/standing position once it was inflated!  … and into the ambulance she went and off to hospital she went … AGAIN!!  Poor mum said "I must have done something really bad to deserve all of this"! … but she didn't - she never did - and it almost broke my heart.

Same emergency doctor, same nurses, same everything, except, it turns out, there is nothing much can be done for a broken shoulder (who knew?) so off we went … back to St. Margaret's!!  Back on the OxyContin, back to how it was four weeks before!!  We didn't think any of us could handle more of this, so I called TCP and suggested  that given that the reason mum was in this predicament (not so much said, as insinuated by the skillful use of my English/Canadian language) was mostly due to the seemingly 18-year old therapist (nice as she was) so could we just transfer the same program to the nursing home, and could we do that soon, and given it was Christmas in a week, could we do that really (really) soon. … and … they did!  Mum went from being a CAP patient to a TCP patient … and a different world. 

Philip Kennedy Centre is primarily a nursing home with a section devoted to getting some patients rehabilitated and ready to return home (TCP).  Mum had a lovely private room (don't get too comfortable they said she'll be moved soon - but she never was) with the most lovely nurses and carers and the loveliest 90 year-old man I have ever met  sitting next to her at the dinner table (he wore a Toronto t-shirt and turns out he'd been to T.O. and he'd worked in FINLAND!!! and his favourite movie was Four Weddings and a Funeral).  It was truly a Christmas Miracle!!

So mum came home for Christmas Day that was 39c, and because the air conditioner upstairs broke down (urgh), well mum couldn't climb the stairs anyway, all 15 of us crammed into Mum's room downstairs (separate ac unit) and we opened presents, had a drink and then wheeled mum to the hotel around the corner for the most yummy Christmas dinner EVER!! … then we all nearly melted walking/wheeling back … and then … we took mum back to PKC and as it turns out - it was  the last time she was at the house.

Back before November I decided to swap houses with my sister.  She's much better at looking after mum than me (pretty useless) and we decided to do it just after Christmas - Joseph was leaving for Canada, Mexico and beyond and then it could be explained to mum that the switch was because Joseph was going away (me too) and not because she needed more care. GOOD PLAN!!   We decided to keep mum in respite while we made the switch and when she was better she would come home … to Jen.   We decided to switch on Friday, Jan 6th , so Joseph would only have a few days to wreck my sister's pristine-white house before he left.   On February 5th I packed! - Loose use of the term "packed"! On February 6th, after we had "packed" , and carried the boxes downstairs and my house was in "sister move-in condition" - sister Jen, called to say husband Michael had to go into hospital for emergency surgery on his head.  (MIchael has hydrocephalus and a shunt and something was wrong.)   So the move was OFF !

 Poor Michael had FIVE surgeries in four weeks (and as of writing this two weeks later he's had another one) to remove the shunt, to fight infections, to put the shunt back and at one point being very very sick and  fighting back … poor Michael … poor Jen!

After his 2nd operation it was obvious that Michael couldn't come to our house and Jen couldn't look after both him and mum so … here's another silver lining … it was a chance to take advantage of mum already in the nursing home and have her moved from "getting-ready-to-come home care" to respite care while we waited for a permanent room and all this was possible because way back in that "house of horrors" that is St. Margaret's, mum, in her Oxy-infused state, passed the "I need care" test!!

I don't know what it's like going into a Nursing Home anywhere else - but here's a snippet of what it takes in S.A. (feel free to skip ahead)… 

In S.A. (since June 2015) if you own your own home and have a bit of money - you are required to pay a RAD (Refundable Accommodation Deposit) between $350,000- $500, 000 just to get in to the home!  Then there are daily fees  (these fees, conveniently, add up to the same  amount as a senior's pension) … and you need to sell your residence to qualify and to come up with the $$s.  IF you pay this amount ($450k in our case) in full it is fully refundable (hence the name RAD) … If you can't afford the deposit - no matter!! -  they can take it out on a weekly basis along with the other fees except … then it is NOT refundable!!  (I don't know what the acronym for that scenario is!)  … The "good"  thing is that you have six months to pay the deposit  - otherwise you are charged interest, compoundable interest (whatever that is - but it's not good me thinks!)  So - off you go and sell your home!  (you should know if you don't own a home or you own an inexpensive home you can still enter a nursing home - you just don't get to choose where, etc. etc.).

Joseph of course is long gone and because the a.c. isn't working upstairs and because most of our worldly possessions are packed into boxes downstairs and because I will NOT carry those boxes back upstairs, I am living out of those boxes  in mum's room downstairs.   And …  because it's above friggin' 35c every day and not below 30c some nights  the a.c. is blasting day/night , and because the Fritsch's have looked after the kids during school holidays about as much as they should, there is babysitting the darlings and because it's now actually February and it's school for J, there's that added bit of excitement to every babysitting day where I try to have the darlings fed (breakfast - I can do that!) dressed (school uniform for J - anything we can agree upon for B!), lunches made (luckily J knows exactly what he wants to eat) and attempt to get to school for 8.30 A.M. (luckily I start all this at 7.00 a.m.), and because we need $450,000AUS we need to sell this house.

I remembered joseph mentioning after our Christmas party on the dock with the neighbours,  one of them said he would buy our house if ever we wanted to sell.  Well - we did so off I went to see if he wanted to buy our house or if he wanted a deal.  Turns out he wanted to buy the house and offered $30k more than we paid for it! That's a good deal … and because he had to sell his house, and because joseph was way until July and because we had until july to pay the deposit to the nursing home, he was most pleased that we could settle around  the end of July.  Phew!  This is good … this is really good!  My family is very pleased with me - I'm pretty darned pleased with myself!  

Then  I went to see the financial advisor who specializes in Nursing Home placements/stategy.  Her name is Sharee and the first thing Sharee did was to explain that the nursing home CHARGES YOU INTEREST ($71/day), EVERY DAY until you pay the deposit!  Huh?  No wonder they don't mind if you take six months to pay!!  They certainly didn't mention it to us when they called to say we had about 1.5 hrs to accept a permanent position or somebody else would take it (and if you refuse you go to the BOTTOM of any waiting  list!)!!  Sharee then did lots of calculations and showed me lots of numbers (she doesn't know how I deal with numbers) and wrote down lots of things and it turns out that even though mum had money - it was really only barely enough to keep her going until death do us part in the nursing home.  SO she said it behoves (my word) you to bring the settlement date as far forward as you can and eliminate the interest payments.  Well that's easy - I'll just tell Peter (he's the neighbour-buyer!)

Peter is about 70, now single much to his surprise and he is (supposedly) an engineer who now lives and works in Port Adelaide.  Poor Peter - he used to live in really fancy places but now not so much. He sees our (bigger than his) lovely white house on the corner as more befitting him. He also has a holiday house down south that he'll sell so he's not poor!  He agrees to the request to bring the settlement date forward to mid-April but of course - there will need to be compensation.  How about $20k less for the house!!  Gulp!  I said er … NO … my siblings wouldn't accept  that!  (Funny(?) thing is if he had offered that price originally we probably would have taken it!)  So he compromised and said - half way.  So we agreed (mostly it was him who agreed) on $660k - $10k less than the original price and still 6 weeks of interest for us to pay.   Gulp!  Now my family isn't quite so pleased with me … and neither am I … and I need to be out of the house in about four weeks!  (All this time my poor sister is dealing with poor Michael in hospital with operation after operation!)

Joseph and I decided we wanted to live in North Adelaide - a nice area close to town and close to Cassia and pretty close to Mischa.  So off I go looking for a place to rent without Joseph!  I tried, I tried really hard to be frugal, but those frugal houses were quite a change from the beautiful house-on-the-water-with-the-view that I had become used to these past four years and I was going nuts. … then I remembered Peter saying  nonchalantly that I could "rent it if I wanted".  So that was the answer !!!  I would rent back from him until Joseph came home (mid July) and then we could find a place together and Joseph would be here to help MOVE!!   Yippee - this is good!!  … Except Peter wanted me to pay him $400/wk rent.  He said he could probably get $500 (yes he could) but goodness me - here I was only living downstairs (my choice for sure) so only wear and tear on such a small portion of the house and here I was, somebody he knew and obviously could be trusted to not wreck the place - and I thought (and still do) that  surely that was worth something!!??  Something like $350/wk?  So we agreed (mostly it was him who agreed) that I would pay him r$400/wk rent until July  … unless the situation changed for either of us.

..and that's where the saga should end! … Mum settling into the home nicely - unaware it's permanent (or is she?) - we just don't use the word … Michael came home from hospital and was doing well (until 4 days ago) … and I could relax and concentrate on Cassia and baby, babysitting the darlings and preparing for my trip (Spain/Canada 6 weeks). … but as Joseph so wisely said "I knew if I left you alone for that long (4 months) you would do something like that".

"That" turned out to be a chance sighting of a rental property - in an apartment building (rare) in N.A, with a view, very close to Cassia (10 min walk) and Mischa (10 min car), 3 bedrooms (space for everything stuffed into the garage), 2 bathrooms AND a garage with a remote door-opener and cupboards along the back wall (spider infested -but cupboards none-the-less!)  $480/wk.!!!  Too good to be true - so I applied and  - "we" got it!!  Yippee -  two weeks to move!!   I'll just pop along and tell Peter that "… the situation has changed for me" and after the settlement (April 21) i won't be paying you any rent.  Oh dear - that impacts his financial situation!  Never mind - we're neighbours, we know each other, we can work something out.  So we agree (mostly it was him who agreed) that I would pay him $1,000.00 in lieu of rent.  (I think he forgot about the clause that said "unless the situation changed for either of us!!!  urgh!).

Never mind … I packed (I thought I was already packed but there were the things we "left until July"!!) … and there were mum's things that needed to be dealt with; sell? take? dispose?  Jen helped a lot, poor John did the trailer run to deliver and to the dump.  I advertised on Gumtree (Craiglist equivalent) and I did quite well;
Mum's china cabinet
 - nothing extraordinary - just a nice solid piece - $25.00!
Yep - replied within minutes !  Come Sunday - and Sunday she did , except Sunday was very windy and when she was loading it into her truck it blew over and smashed!!  She didn't ask for her money back so I gave her mother (who wanted the cabinet and was distraught) about 10 other things of mum's for free!!  … and they left happy!  
Jen's single bed. 
 …er KING SINGLE!  never heard of it - but it's a wide/long bed with a trundle that pops out and up and turns it into a KING BED!!  $200 Jen says - even though I know she paid close to $1,000 for it. 
Yep - replied and came to pick it up - except there was a mark where I had attached a note to the bedhead with scotch tape - so take $50 off (out of my pocket) and they were happy!
Jen's white table
Jen moved her table over here in anticipation of them moving in.  
Except I scratched the top so I had to replace it $150.
So $50 - yep that's a deal - except they offered $40 so I took it.
Jen's stroller
Jen bought a stroller 6 years ago and never used it - she wanted to give it to me.
I already had a used one from an uncle - so we decided we could get more for the new one!
$50 (figured she paid $100 -turns out she paid $60)
Yep - a lady wanted it but had to catch a bus to pick it up.  I offered to deliver but she wouldn't be home until 10 that night  but that's OK with me - I'm busy during the day anyway!
Turns out the lady is 46 with a 14month-old baby who was taken away from her due to domestic violence. The baby has been in 14 different homes and now she can get him back if she agrees to not let the Father have anything to do with them.  She has older children and the 26 year old thinks she should have the baby and is telling the authorities that her mother isn't fit to look after the child. She's also waiting to find out if she is pregnant again.  She also has a snake in her house and cats and a lot of things.  But she is very happy with the stroller and she said "thank you Jill" as I was leaving.
Miscellaneous
Out the back of our house on the weekend (lots of people around on weekends) I sell (give away) lots of things that should have fetched more - but I'm just happy people are taking them away.  … and I end up with $5!!!

I decide I need movers and the air conditioner is ready to be installed on the same day as the movers are coming and I'm about to collapse when the neighbours invite me down for farewell drinks!  How lovely - such great neighbours!  I'll miss them.  … I'm supposed to meet with Peter to go over things at the house -so they see him walk past and invite him up for drinks as well (urgh!) … and somebody mentions that he had sold his house!  WHAT!!??!!  Whao!! - yep - he sold his house (I know not when and I know not for how much (but I will find out)) and when I ask he tells me that settlement date is "in about a month"!!!  So it seems that "the situation changed" for Peter as well but he forgot about that clause and he forgot to tell me and he certainly didn't suggest I forget about the $1k!!  

Never mind (well I do - a lot!) - but here i am in this lovely, large apartment with the most wonderful views (7th floor) over the city - looking towards the zoo (and hearing the Siamangs) and towards the hills and while it's not all new and fancy it is old and well-made  … and tomorrow I'll go and pickup our car that has taken four weeks to bash out the hail-bumps and I'll hope that Telstra (phone/internet) only take the afternoon to install and not two days that it took to get electricity hooked up … and then I'll be gone! … and I hope Joseph will love this place as much as (so far) I do!

SO THAT'S THE END!! … or is it???
















Sunday, 10 January 2016

Eight days...

It was eight days down south at Victor Harbor (1.5hrs from Adelaide) at a rental,  two doors down from Simone's parent's beachouse, for Christmas ... and … The Wedding!

Christmas Eve 24th ... 36c

At 8.00 a.m.- to try and beat the heat (43c in Adelaide) I drag my Mother kicking and screaming (why can't we just stay here and have a normal Christmas?) down to the rental to meet up with brother David, Anita & kiddies and C&P. It's 36c down here and it turns out to be a beautiful evening out on the front deck, for our (now) traditional C.E. raclette.

3 raclettes for 9 people = no fighting and not so much leaning!
just a power bar and loooong cord!
We line three of 'em up along the table and pass the food around and around and we all loved it - except mum (she doesn't want to be here and she doesn't want to cook her own dinner and she certainly doesnt' know anything about this fang-dangling thing!) oh dear!

Joseph and I are sleeping out in the van so mum can have her own room in the house.  A seemingly selfless act except that it's a very hot night and the house has only a teeny tiny split-system cooling/heating unit on the wall of the family room so the cool air barely reaches past the kitchen let alone into the bedrooms.  Out in the van we (…er... I) have our a.c. blasting so much cold air I need a quilt!

How wonderful to have our tree from Canada!!

Christmas Day 25th ... 37c!!

The a.c. unit is working overtime and we have a lovely morning watching the grand kiddies open gifts...




 and french toast and house-wife's helper for breakfast ...



and I try and find jobs for mum to do...

Here set the table mum!
 but I'm constantly having to explain to her why we are here and why we are having Paella for Christmas dinner and how tomorrow will really be our Christmas Day (cold meat & salad - yikes) when the other siblings join us and why she shouldn't give out her gifts yet - "we'll do it tomorrow", but it's all too much for her - she gives out her envelopes anyway and although Pablo makes a wonderful Paella and Anita's chocolate slice cake for dessert is yummy I realize it probably was too much.

Backup lasagne thanks Anita!
Thanks Pablo (&Cassia)




















Boxing Day 26th … 21c!!

The others arrive and thank goodness brother John has kept the turkey hot and David has decided he can keep the lamb hot and thank goodness sister Jen's potato bake is hot and it doesn't matter that our ham is cold because sister-in-law Kimmy, bless her heart, makes gravy and mum appears to be (almost) happy... and then she gets to give out the rest of her envelopes (finally - she's be agonizing over them since early December!!)  and then... after Christmas pudding Jen (God bless her) takes Mum home … to Port Adelaide …  and now finally … everybody is happy (well maybe Jen not so much)!
Almost a smile mum!!
We made her stop doing the dishes for the photo!!

December 27th ...

The day after Boxing day we do nothing and the next day we pack up and leave the rental! The others go back home but we stay down because …we have The Wedding!!

December 28th ...

We move on over to Jane  & Barry's and park right on their front lawn (so we became their view - nice) and now I'm floating around in seventh heaven in anticipation of the Canadians arriving … but Joseph wasn't floating … he has a UTI and he's moaning and groaning and sleeping. 

Getting sick over the Christmas holidays is tricky … Boxing Day IS the day after Christmas but it isn't a holiday it's a Saturday and that was the day Joseph became ill.  Monday is the Boxing Day HOLIDAY and that's the day he realized he needed to see a doctor . The clinic is closed (public holiday), and there's a 2hr++ wait at the tiny hospital emergency that is manned by one nurse and crammed with people inside and out!  People with children give up and go home and so do we. So it was another 24rs before we (he) had antibiotics and the countdown to be well enough for The Wedding because we had our INDIAN OUTFITS to wear!!

At last the Canadians started to arrive; the groom's parents; Gail & Al O'Brien, sister Lauren and even the groom (Scott)- in from Thailand).  How wonderful to have some Canadians right here  … and I could walk to their house in 5 mins … and I did!!!  
Here I am minutes after Gail arrives!
Welcome to the sun Lauren!!


Then the other O'Briens arrived; Craig (brother of groom), Alecia and 3 kiddie poohs (6,2,6mths)  and Alecia's parents (O'Briens #2) drove (yep drove) over from Melbourne (8 hrs) in the baking heat, with the baby vomiting, conveniently apparently, at rest stops.  I think I was a tad more excited to see them than they were me … but they pretended they were and for crying out loud,  they were JUST AROUND THE CORNER from us!!

Payal (the bride - flew in from Thailand with just a minor scare when her luggage that contained 35 saris (for the OBrien's and the O'Brien's and various relatives but not me) went missing but somehow her Aunt found it in another country) and she stayed with her parents (Dr. Jagdish and Dr. Madhu Saraf) who have a beach house a few streets from us … but I didn't go to their house!

So I'm still floating around and wanting to visit with the Canadians but they were busy with events that we may or may not have been invited to because I didn't read the website very well.  There was a meet and greet dinner and a winery tour and then the more traditional events started …

Wednesday Dec 30th … 38.5c

This was the "Tumeric Party" - I'm sure it has a proper Indian name but I didn't read the website very well.  We may have been invited - not sure - but we didn't go so this is second-hand ...

The party was held down on the beach just in front of the Saraf's house … and it consisted of covering the bride & groom (+others?) in Tumeric.  Apparently it can turn into a crazy tumeric-throwing thing - but in this case the Tumeric had been bought over from India so it was more controlled.  Usually it is washed off with water but because they were so close to the beach - they used the ocean.   Apparently there was a lot of (amazing) food and it was the most perfect evening weather-wise - I know because we went for a walk on the same beach about a kilometre away  - but we weren't throwing Tumeric - WE were using the scope to checkout a Plover sitting on her nest!!

Sadly because I wasn't there I have no photos :(

Thursday Dec 31st … 39c!!!!!  VERY HOT!!

Afternoon:  "Henna party"  - website calls it a Mendhi Party - here's the write-up:
 The Mehndi ceremony is about beauty and elegance and symbolizes the Outer and the Inner Sun. The Mehandi is one of the sixteen adornments of the bride and her beauty is believed to be incomplete without it. The ceremony normally takes place just before the wedding ceremony. During the ceremony, turmeric paste is applied on a bride’s face, feet and hands. After this, a skilled Mehndi expert applies Mehndi on the bride. Traditionally, the Mehndi applied to the bride was obtained by drying the leaves of the Henna plant.

This Mendhi party was ladies only and the Tumeric was done the night before so um … not sure.  Anyway - it was a VERY hot day and it was held at the Saraf's beach house and it was packed with women and children.  Dr. Saraf declared that the air-conditioning  couldn't handle the crowd so he was running around putting fans everywhere.  There were women filling the downstairs with limbs being painted and even more upstairs with more painting.  

Downstairs


Upstairs - oh yes - there was the odd man or two!

Then a lady started banging a drum and they all started singing so I asked what they were singing about and they said they were telling the bride to "keep her Henna on because the groom would be there soon!!"  Apparently somewhere on Payal's body in the middle of the decoration on her arms,legs and perhaps other parts -  Scott's name was to be found and it was Scott who was to find it! … but not at this party :( 

I thought I would die from the heat but I stayed long enough to have my hand henna-ed  (?) - I think the girl was getting a little tired because it was a bit blobby and then when I was putting the car into reverse I needed my right hand et voilĂ  - smooch went the henna and messed up the design anyway!  :(

before I hit reverse!


Evening:   Sangeet Party  … 35c!!  - here is the write up:

The Sangeet night is a time for celebrating, singing, dancing and joking. It can include some good-natured ribbing of the couple’s soon-to-be in-laws and it’s also a perfect time for wedding guests to meet and get to know each other. The bridal and grooms party will each learn songs and dances to perform. Traditional Indian instruments, like a dholki (a two-sided drum), are often used in the ceremony as well. After all the singing and dancing is finished, you will enjoy dinner and drinks as we also say goodbye to 2015 and welcome 2016!

This was held at Waverly Estates - the place where Mischa & Simone's wedding party stayed five years-less-a-month ago (and partied on after their wedding until - well the next day!) 

Daughter Cassia has become the hero for babysitting the three O'Brien children on New Years Eve!!  Wakeful children aren't Cassia's forte but these were going to be sleeping children - except that Chloe woke up with a pain in her tummy and wanted her mummy and then she wanted a song - she wanted "Hush Little Baby" so darling Cassia Googled the words… and sang ...and dear little Chloe fell back to sleep.  Good work Cassia - ya just gotta do the same again tomorrow night - yikes!! 

Back at the party some people were in Indian clothing but most of the Canadians (and me) wore comfortable party clothes.

I'm very comfortable - Joseph said he was!
A couple of Indian ladies commented on my necklace - they appreciated what it was
… and it was made in India!

The happy couple arrive!
Payal turned out to be quite the dancer in that outfit!
The happy couple were seated at the front of the stage and they watched as different groups danced a special dance for them - to wish them luck I suppose!  The friends of the bride danced, the friends of the groom danced, some women danced, some other people danced, the relatives danced  - all "Bollywood style dancing".
That's Chloe (white shoes) dancing before she went home to sleep and woke up!
There were children everywhere!

Then everybody was invited onto the stage to dance Bollywood and the highlight for me - just before we headed to the back of the tent for the Indian buffet was Brian Adams' "Summer of 69" that sent the Canadians into a frenzy - Alan OBrien (groom's father) was doing air-guitar moves on top of the Bollywood dancing!) !  I thought I had died and gone to heaven!  (I cried when they played it this Canada Day while we were at the hill and now - how crazy to hear it here in Adelaide with a bunch of Canadians! ) oh dear - doesn't take much to get me started these days I'm afraid!)
 Anyway -the buffet was super yummy.

Friday Jan 1st. … 26c forecasted - actually 23c - on the beach it's even cooler!

The Wedding (Vivaha)

2.30- 4.00  beachside at the Surf Life Saving Club just down from the Sarafs' beach house - here's the description:
You will be joining us for a traditional Indian Wedding Ceremony. A traditional Indian Wedding (Vivaha) is comprised of a series of ceremonies and rituals. It is meant to unite two persons so firmly that, although they retain two separate bodies, they become one in spirit. Vivaha is the sacred, spiritual partnership between two individuals in mind, body, spirit, and soul in this and their future lives.
The ceremony takes place in the Mandap, a wedding pavilion (canopy built of four poles to represent the universe). Each of the five elements - fire, water, air, earth, and space - are represented within the Mandap. Agni (the Holy fire) exists as a divine witness to this sacred union and symbolizes the illumination of knowledge and happiness. Agni’s smoke, coupled with the recitation of Mantras, is believed to convey the blessing of the spiritual union.

Hard to find the words for this!  Wow!  Women in the most beautiful saris!
Men in their beautiful Kurtas with their hats and scarfs to depict which "side" they were on (groom/bride).

Joseph (ex Ottawa) and Gerry (Ottawa) in their traditional dress and
maybe not quite so traditional sandals!!
… wearing their headdress and scarf to denote
they are on the groom's side!

Such colours!!

Al is the groom's father (O'Brien #1 family)
O'Brien's #2 with Chloe!


these are random children - spectacularly dressed!

The GROOM!!
That's Scott (left), Evan (his nephew of Craig O'Brien family fame) and this cousin
and they might be the only people wearing the traditional shoes!



- with just a flash of a life saver running through it ... 


and an odd man in his speed (a.k.a. budgie smuggler) having a shower just behind it all. 



Then we (the Canadians) made a group around Scott (to symbolize the village) and walked him down to the Mandap with all of us singing.

Here's as many Canadians as they could muster - to sing
  note addition of Cassia (the hero) to help swell numbers
(you can see why we were invited).
Carolyn's turquoise sari (on right of orange coat) and close on her right - Gail's green/gold - were two of the saris that were lost/found!
 I'm sure it would normally be a traditional Indian song but here it was a traditional IRISH song  as we ushered the groom to his bride.






 She was kept on the other side of the curtain until something happened and then they were together and they sat as there was smoke and oil and other things and it took well over an hour and lucky for us there was sweets handed around and drinks to keep us going!
Those yummy sweets!!

It was a loooong ceremony!
Chloe the beautiful and very busy flower girl.
Then Scott's uncle Tim sang the most beautiful Garnet Rogers song "All that is" to the couple and Payal cried and so did I (and others I'm sure).

It was quite the ceremony!  Lots of traditions but quite casual as well with some laughs and to no particular schedule!  When it was over (4.30) and we threw rose petals (oh dear - how beautiful) Payal's brother announced that the reception would be "6.30 for a 7.00p.m. start"!!

  … I was pretty excited to be dressed in my "suit" - not a sari like everybody else - but it turned out to be a good thing because it seemed most of those in saris found them to be a tad uncomfortable and they changed for the reception - not me - I couldn't have been more comfortable with my black tights underneath.  I had taken the sleeves out (well my sister did) because I just knew I was going to melt in the heat - but it turned out to be so cool I was wishing I had my sleeves in!

The blue pants that came with the suit were waaay too big and I realized the night before that
my white pants were to floppy so Simone said "wear your black tights"  …OK I can do that !!

Reception 7.00 p.m. … 22c! - (now we need a pashmina) 

Back to Waverly Estates for a more traditional "eastern" reception (i.e. tables/chairs/cake table-service etc.).  We raced over to arrive just before 7.00 to find absolutely NOBODY there!  Just the people setting up and the bride's brother - the MC.  I told him he had specifically said "6.30 for 7.00 p.m. start"!  YES yes he agreed - that is what he said - but he knew the Indians would be late - the Indians are always late (apparently).   

The tent looked spectacular ...


and although some women changed out of their saris - others changed into DIFFERENT saris that seemed even more beautiful than those from the wedding!






Each table of twelve was given a roast of lamb (yes a whole roasted leg of lamb), a huge plate of chicken pieces, a salmon, roast potatoes, veges & salad.  We were lucky? (spoiled more like it) to be sitting at table  #2 with Al and Gail and the Sarafs!  Yikes!  I asked Gail to change us but she said it wasn't her decision to seat us there so we should just stay!  So we did and we ate about 1.5 hrs before Mischa and Simone did who were waaaay at the back of the tent at table #14!!

 Back at the #2 O'Briens the children were sleeping with hero Cassia on guard - this time ready with the words for Chloe …and she did wake up and Cassia did sing and dear Chloe did go back to sleep again! 

There were speeches -Al's speech was  lovely and we THINK he read a poem at the end! (urgh can't remember!) There were the gut-wrenching ones (Scott, Payal).  Payal's best friend from high school was hilarious.  Dr. Saraf was even more hilarious!  He said Payal was the CEO - directing proceedings from 5,000kms away (Thailand) while he was the COO (Chief Cheque-writing Officer)!!    He said Payal's mantra was "earn less, spend less but get the best"!!  He said "now how do you do that!!?  Well you have a very generous father!"  He's right I would think he wrote a lot of cheques!  Apparently they flew some people from India and Thailand and then they gave all of the women a pashmina at the end of the night!!  

Dear me!   I was overcome to be a part of it all. 

2016 

Time to take off my Indian suit and time to say goodbye (sob sob) to the Canadians leaving for other places, and time (way over time) to move our van off of Jane & Barry's lawn and after eight crazy days it was time to drive back to Port Adelaide  … where I tried to tell anybody who would listen... about The Indian Wedding at Victor with the Canadians.